What Is Caregiving?
Whether it’s a newborn baby, an aging parent, or ill spouse, care is a universal experience we all will be impacted by. The systems that provide and finance care are deeply connected to our social insurance programs like Social Security, Medicare, Medicaid, and Paid Family and Medical Leave. Care connects us across families, communities, and generations. It enables people to work, learn, and thrive, sustaining both individual wellbeing and the broader economy. Yet despite its fundamental importance, care work—whether paid or unpaid—is often undervalued, under-supported, and unevenly distributed.
Care is in crisis: the current caregiving system is severely underfunded and fragmented, leaving millions of working families unable to access affordable, high-quality care across childcare, paid leave, and long-term care.
In Their Own Words
“I’m going to tell you what… for all that I’ve done and all that it’s cost me financially, health, time, and all that, I’m going to look back and be glad that I did this for these three years because there’s so much that I’ve gained from it. Whether it’s standing tall and persevering, or helping my mom who couldn’t help herself… I make a difference.” –”Claire”
Source: The People Say
“[I] work full time and then making sure that [my mother is] good and she’s showering and being there with her to help her with that. Having to do the other thing[s], clean the house…. So just time management is hard for me…. It’s just I got so much to do, and it needs to be done. I know there’s home health available… but that’s not cheap, you know.” –”Tabitha”
Source: The People Say
“I was actually a caregiver for my folks… My mom called me and said, ‘Your dad’s taking a pretty serious fall, I think you need to come.’ I went to their house in November of 2015, and I didn’t come home until May of 2020… People should be allowed to work and save and have what they’ve accumulated solely purpose[d] for their care to the end of their life, period.” –”Brandon”
Source: The People Say
“I have to make sure he has his breakfast. I have to make sure that he takes his medicine. I have to check his pressure. I have to talk to him every day about smoking… It’s just a lot. It’s a job, and I do need help. But like I said, he has two grandchildren, and they won’t help. If I just had someone to come in maybe two times out of the week and stay a few hours and let me go and take care of what I need to take care of, that would be very helpful.” –”Anna”
Source: The People Say
By the Numbers
Family caregivers provide $600 billion in unpaid care.
Source: AARP
1 in 4 adults serve as family caregivers.
Source: Next Avenue
692,000 Americans are on a waitlist of 3 years or longer for home services through Medicaid.
Source: KFF
1 in 6 home care workers live in poverty.
Source: PHI
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